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MEDICAL WHITE PAPER
THE VAGARIES OF SICKLE CELL DISORDER
Published in Short Medical News
https://shortmedicalnews.com/?s=sickle+cell&id=826&post_type=post
Sickle cell disorder (SCD) is a deadly disease that affects primarily African-Americans, many Hispanics, as well as populations in India and the Middle East. Unfortunately, the disease has been basically ignored due to the mythological assumption that characterizes SCD as a Black disease. Consequently, there has been inadequate funding and understanding of this deadly disease. As is well known, the disease is very painful with a severe, multi-organ effect on the body. In addition, sickle cell trait, although not as severe as the disease, is even less understood by science. Indeed, it is well known in the scientific community that although there are more people with SCD in the United States than different conditions such as cystic fibrosis and hemophilia, SCD patients receive markedly reduced access to far-reaching, synchronized treatment. [1].
Research has shown that Black physicians and researchers have less access to the National Institutes of Health (NIH) funding overall, which impacts an increased understanding of the disease due to racism.[3] [4] Historically, the lifespan of a person with sickle cell disease has been about 45 years. Research has been incremental, which helps to increase the lifespan, but continuing disparities in funding go a long way towards limiting the understanding of the disease. What this has meant for those who suffer from not only the disease but the trait, is that treatment by clinicians is hampered by racist assumptions. Patients are frequently told that their complaints of pain, dyspnea (shortness of breath), etc. are imagined, or at a minimum, exaggerated. It is not uncommon for sickle cell patients, with either the disease or the trait, to have experienced pulmonary embolism episodes, only to have gone undiagnosed. [5] This negligent clinical attitude is confirmed by the National Academies Press, a unit of the National Academy of Sciences, which stated that ‘Americans still see African-Americans as somehow different from other racial and ethnic groups”. [6]
It is well known that the Black community suffers immensely from the racial disparities in health care. Indeed, as has been acknowledged widely, racism is a public health problem. [7]. Unfortunately, due to the inadequate and inefficient education of medical students, there are many missed opportunities. However, We have an enormous opening with science today with CRISPR, the gene-editing procedure. CRISPR is in an experimental stage but has the great potential to cure diseases like sickle cell.[8] However, everything depends on people’s behavior. The new scientific discoveries only have utility if we eradicate the human behavior problems that make scientific discoveries impotent due to racist practices. Note the earlier reference to the difficulty in obtaining NIH grants experienced by African-American researchers.
A transformation of behavior is required, which will result in a change in mindset. Fortunately, my consulting work leads me to solve problems. My human behavior research, developed using cognitive semiotics, has resulted in a discovery that accomplishes that behavior transformation. My solution, known as a Symptomatic Thought Process® successfully results in a change in behavior that will usher in a new dynamic to allow us to take advantage of the great scientific discoveries that can come about by eradicating obstacles in not only medicine but every other academic discipline. [9] [10] [11] [12] A Symptomatic Thought Process® improves the efficacy of any practitioner no matter what the discipline, simply because the change in mindset encourages symptomatic decision-making, instead of symbolic thought. Symbolic thought leads to a mindset that engenders superstition, mythology, and racism. Until we solve the problem of racism, which is actually a mental illness, we will continue to have not only problems in medicine but continued global conflict all over the world.
[1] Sickle Cell Disease is Underserved – https://bit.ly/3eGz7gw
[2] Grosse SD, Schechter MS, Kulkarni R, Lloyd-Puryear MA, Strickland B, Trevathan E. Models of comprehensive multidisciplinary care for individuals in the United States with genetic disorders. Pediatrics. 2009;123(1):407-412
[3] Racial disparities in NIH Funding. https://diversity.nih.gov/building-evidence/racial-disparities-nih-funding
[4] Ginther, D., Schaffer, W., Schnell, J., Masimore, B., Liu, F., Haak, L., Kington, R. (2011 August 19). Race, ethnicity, and NIH research awards. DOI 10.1126/science.1196783
[5] Burnham, J., Broussard, M. & Milbrandt, T. (2014). Bilateral pulmonary embolism in an adolescent sickle cell disease and a recent total hip arthroplasty: a case report and review of the literature. Iowa Orthopedics Journal 34, 107-110.
[6] Sandefur, G., Campbell, M., & Eggerling-Boeck, J. (2004). Racial and ethnic identification, official classifications, and health disparities. Critical Perspectives on Racial and Ethnic Differences in Health in Late Life. National Academies Press, 48.
[7] HPHR Editorial: Racism is a Public Health Problem (2015 Winter). Harvard Public Health Review, 3.
[1] Sickle Cell Disease is Underserved – https://bit.ly/3eGz7gw
[2] Grosse SD, Schechter MS, Kulkarni R, Lloyd-Puryear MA, Strickland B, Trevathan E. Models of comprehensive multidisciplinary care for individuals in the United States with genetic disorders. Pediatrics. 2009;123(1):407-412
[3] Racial disparities in NIH Funding. https://diversity.nih.gov/building-evidence/racial-disparities-nih-funding
[4] Ginther, D., Schaffer, W., Schnell, J., Masimore, B., Liu, F., Haak, L., Kington, R. (2011 August 19). Race, ethnicity, and NIH research awards. DOI 10.1126/science.1196783
[5] Burnham, J., Broussard, M. & Milbrandt, T. (2014). Bilateral pulmonary embolism in an adolescent sickle cell disease and a recent total hip arthroplasty: a case report and review of the literature. Iowa Orthopedics Journal 34, 107-110.
[6] Sandefur, G., Campbell, M., & Eggerling-Boeck, J. (2004). Racial and ethnic identification, official classifications, and health disparities. Critical Perspectives on Racial and Ethnic Differences in Health in Late Life. National Academies Press, 48.
Perspective on the Civil War
April 19, 2011
Observations from Edgar J. Ridley on the 150th anniversary of the Civil War.
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View Edgar J. Ridley participating on a panel discussion titled the State of Civil Rights during the 2008 Harlem Book Fair - click on the link below:
http://www.c-spanvideo.org/program/StateofCivil
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Published in Short Medical News - October 28, 2020
https://shortmedicalnews.com/index.php/2020/10/28/the-case-for-the-expanded-use-of-symptomatic-signs/
Copyright Edgar J. Ridley 2020
Medical experts have long pursued methods to develop tests that will show who will potentially develop Alzheimer’s disease before symptoms actually occur. Recent research reveals that a spinal fluid test can identify those patients who will eventually develop Alzheimer’s disease. This new test provides 100% accuracy.
This recent research is but one more significant indicator that science, and indeed all of academia, has been providing a disservice by the limited approach to symptomatic signs. It has long been understood that disease symptoms are a natural occurrence. Reading these symptoms accurately to initiate proper medical treatment has cured many diseases. What has not been understood is that the testing procedures that locate disease states – before symptoms occur – are actually using symptomatic signs from early medical testing that clearly shows the potential for the future disease state. It is imperative that the symptomatic signs that result from diagnostic testing be read correctly. (As Harvard professor Marjorie Garber stated in her book, Symptoms of Culture, that becomes a “reading practice”). [1]
It has been traditionally understood in academic circles that symbols are inherently more valuable than symptoms. On a public television program, The Human Spark, it was stated that the most important ingredient separating human animals from non-human animals is the humans’ ability to symbolize; indeed, symbols are the origin of science, religion, and what makes humans creative and innovative. Crossing over from science to business, even the often-utilized concept of root cause analysis suggests that symptoms should be subordinated in problem-solving when seeking the root cause of a dilemma.[2] But symptoms, which were first used in antiquity as cultural indicators, are innate products of the neurological processes of the human brain and are unavoidable in their usage. Conversely, symbols are not innate to the human brain – they are learned, developed, and are actually artificial constructs. Therefore, all clinical tests that yield results provide symptomatic signs which can never be replaced by symbolic signs.
Accordingly, it is imperative that scholars and researchers begin to understand that the very tests and procedures that they come up with to diagnose and eliminate disease states are dependent on the correct reading of symptomatic signs to not only solve medical problems but every problem that humans encounter in the universe. These symptomatic signs can be used on an interdisciplinary basis. For instance, one method that shows the importance of symptomatic signs is DNA testing. The results of DNA testing are symptomatic signs of the problem that calls for DNA testing in the first place.
Traditionally, academia and scholars have gone the route of symbolic thinking and symbolic behavior. That same symbolic behavior has produced superstition and mythology – ingredients that play a considerable role in disease states such as psychological problems that cause obesity, drug use, and mental illness. It is critical that symptomatic behavior patterns replace the traditional symbolic behavior that is causing the problems that we face in civilization. An outstanding example of symptomatic behavior has to be the unprecedented collaboration between science and industry in the collection of data that led to research on Alzheimer’s. Egos and personal agendas were set aside in the search for a solution. Scientists Neil Buckholtz and William Potter revealed a behavior without symbolic intent as they affirmed that collaboration to solve the Alzheimer’s dilemma was more important than individual fame. Their behavior was indeed symptomatic behavior, which is the kind that will produce effective results in the problems that affect civilization.[3]
[1] Garber, Marjorie (1998), Symptoms of Culture, Routledge
[2] Stiglitz, Joseph, “How to Fix the Global Economy”, New York Times, October 3, 2006. - “Treating the symptoms could actually make matters worse.”
[3] Kolata, Gina, “Sharing of Data Leads to Progress on Alzheimer’s (2010 August 12). New York Times.
SANKOFA RESPONSE
Edgar J. Ridley ©2010
These thoughts are in response to the New York Times article titled “Coffin’s Emblem Defies Certainty”, dated 27 January 2010.
This is another unfortunate example of the propensity of many Western scholars to deny the African origin, by way of diffusion, of all symbolic phenomena that has arrived in the new world. To reassign the sankofa symbol, of the African burial ground, to Anglo-American phenomena, is another tragic, yet inept, attempt to disregard African contributions to civilization.
To move this discussion along the continuum, the fact is that symbols, due to their mythological content, can be interpreted in a million different ways. Indeed, that is what symbols are: myths that are at the mercy of the beholder. However, the fact remains that symbolism originated in Africa by way of a neurological misadventure. The antiquity and design of the symbol sankofa leaves no doubt that it is African. Symbols, such as this emblem found at Manhattan’s African burial ground, possess historical signposts which have their origins in an African symbolic thought process.
However, there is a larger problem at hand, and that would be the unproductive, superstitious tendency for Western academia to dismiss any thought of major African influences in western culture. That state of denial is due to racist thought patterns that are extremely difficult to abolish. The historian, Erik Seeman, unfortunately is part of a pattern that noted Egyptologist Cheikh Anta Diop called the “problem of the most monstrous falsification in the history of humanity by modern scholars.” Diop described a continuing pillaging of history that is carried on by academia in their analysis of African contributions to civilization. With the exception of outstanding archaeologists such as Christopher Henshilwood and Alison Brooks (of University of Bergen, Norway and University of Witwatersrand, Johannesburg; and George Washington University, respectively), this racist mindset must be attacked and shown for what it is - the continual miseducation of the public at large. It is a pedagogy that filters down to the general population and inherently produces a symbolic behavior that will continually lead to the decaying of civilization as a whole and western civilization in particular.
Edgar J, Ridley in consultation with Roslina Bux, Productivity Consultant, at the Malaysia Productivity Corp. in Selangor, Darul Ehsan, Malaysia
Edgar J. Ridley conducting leadership training in Knowledge Sharing Session on Managing Technology and Innovation, in Penang, Malaysia
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